Hypermobility, Flexibility,
and Strength
a one-day workshop
with Jennifer Milner
and guest expert Dr. Linda Bluestein
Resources
Bendy Bodies Podcast with the Hypermobility MD
Specific episodes:
-
Exploring the Link Between Neurodivergency and Joint Hypermobility with Jessica Eccles, MD
-
Understanding Overstretching with Jennifer Milner
Pointe Magazine article by Dr. Linda Bluestein
"Understanding Joint Hypermobility in Dancers" article for Healthy Dancers Canada by Dr. Linda Bluestein
Managing Joint Hypermobility Syndrome - a guide for teachers
Lisa Howell YouTube video on chin stands
Wav Sensorimotor Trainer (the water stick Aubri used for balance!)
Aubri struggling with the alphabet video
Cirque Physio for great tips on strengthening at end range
BlazePods (full disclosure - this link will get you 20% off but I am an affiliate)
The Library Aesthetic online library
where I contribute exercises
Jason Harrison, owner of Present Tense Fitness (great jump protocols)
Rob Tsai, owner of Dance Prehab (another great PT to follow)
Upcoming events
IADMS world conference October 17-20 in Italy
Jennifer will be presenting on training the psoas, and bringing real-life applications for physical training and rehab into the dance studio.
Stay in Touch!
@jennifer.milner on Instagram
917-689-7240
Dr. Linda Bluestein:
Hypermobility MD website
Bendy Bodies podcast website
@hypermobilityMD on Instagram
@bendybodies on Instagram
Dr. Bluestein's references:
1. Afrin LB. Some cases of hypermobile Ehlers-Danlos syndrome may be rooted in mast cell activation syndrome. Am J Med Genet C Semin Med Genet. 2021 Dec;187(4):466- 472. doi: 10.1002/ajmg.c.31944. Epub 2021 Oct 31. PMID: 34719842.
2. Baeza-Velasco C, Sinibaldi L, Castori M. Attention-deficit/hyperactivity disorder, joint hypermobility-related disorders and pain: expanding body- mind connections to the developmental age. ADHD Attent Defic Hyperact Disord. (2018) 10:163–75. doi: 10.1007/s12402-018-0252-2
3. Bovet C, Carlson M, Taylor M. 2016. Quality of life, unmet needs, and iatrogenic injuries in rehabilitation of patients with Ehlers–Danlos Syndrome hypermobility type/Joint Hypermobility Syndrome. Am J Med Genet Part A 170A:2044–2051.
4. Bluestein, LS. Pain Management in Hypermobility Disorders‚ Frequently Missed Causes of Chronic Pain, Topics in Pain Management. Volume 32, No. 12. July 2017. Pages 1-11.
5. Callahan, A., Squires, A., & Greenspan, S. (2022). Management of Hypermobility in Aesthetic Performing Artists: A Review. Orthopaedic Physical Therapy Practice, 34(3), 134-145.
6. Casanova EL, Baeza-Velasco C, Buchanan CB, Casanova MF. The Relationship between Autism and Ehlers-Danlos Syndromes/Hypermobility Spectrum Disorders. J Pers Med. 2020 Dec 1;10(4):260. doi: 10.3390/jpm10040260. PMID: 33271870; PMCID:
PMC7711487.
7. Csecs JLL, Iodice V, Rae CL, Brooke A, Simmons R, Quadt L, Savage GK, Dowell NG, Prowse F, Themelis K, Mathias CJ, Critchley HD, Eccles JA. Joint Hypermobility Links Neurodivergence to Dysautonomia and Pain. Front Psychiatry. 2022 Feb 2;12:786916. doi: 10.3389/fpsyt.2021.786916. PMID: 35185636; PMCID: PMC8847158.
8. Contemporary approach to joint hypermobility and related disorders. Castori, M, Hakim, A. Curr Opin Pediatr. 2017 Dec 29(6):640-9.
9. Daylor, Victoria BFA; Gensemer, Cortney PhD; Norris, Russell A. PhD; Bluestein, Linda MD. Hope for Hypermobility: Part 1—An Integrative Approach to Treating Symptomatic Joint Hypermobility. Topics in Pain Management 38(8):p 1-9, March 2023. | DOI: 10.1097/01.TPM.0000924780.91929.b3
10. Daylor, Victoria BFA; Gensemer, Cortney PhD; Norris, Russell A. PhD; Bluestein, Linda MD. Hope for Hypermobility: Part 2—An Integrative Approach to Treating Symptomatic Joint Hypermobility. Topics in Pain Management 38(9):p 1-10, April 2023. | DOI: 10.1097/01.TPM.0000933968.28098.59
11. Demmler JC, Atkinson MD, Reinhold EJ, Choy E, Lyons RA, Brophy ST. Diagnosed prevalence of Ehlers-Danlos syndrome and hypermobility spectrum disorder in Wales, UK: a national electronic cohort study and case-control comparison. BMJ Open. 2019
Nov 4;9(11):e031365. doi: 10.1136/bmjopen-2019-031365. PMID: 31685485; PMCID: PMC6858200. doi: 10.1097/RHU.0000000000001864
12. Desai MJ, Brestle M, Jonely H. Evidence for central sensitization as classified by the central sensitization inventory in patients with pain and hypermobility. Pain Pract. 2024 Aug 27. doi: 10.1111/papr.13411. Epub ahead of print. PMID: 39192465.
13. Eccles JA, Quadt L, Garfinkel SN, Critchley HD. A model linking emotional dysregulation in neurodivergent people to the proprioceptive impact of joint hypermobility. Philos Trans R Soc Lond B Biol Sci. 2024 Aug 26;379(1908):20230247. doi: 10.1098/rstb.2023.0247. Epub 2024 Jul 15. PMID: 39005028.
14. Eccles JA, Beacher FD, Gray MA, et al. Brain structure and joint hypermobility: relevance to the expression of psychiatric symptoms. Br J Psychiatry. 2012;200(6):508–9. https:// doi. org/ 10. 1192/ bjp. bp. 111. 092460.
15. Ewer ER, De Pauw R, Kazkazk H, Ninis N, Rowe P, Simmonds JV, De Wandele I. The Spider: a visual, multisystemic symptom impact questionnaire for people with hypermobility-related disorders-validation in adults. Clin Rheumatol. 2024 Sep;43(9):3005-3017. doi: 10.1007/s10067-024-07071-7. Epub 2024 Jul 31. PMID: 39085705; PMCID: PMC11330398.
16. Gensemer C, Burks R, Kautz S, Judge DP, Lavallee M, Norris RA. Hypermobile Ehlers- Danlos syndromes: Complex phenotypes, challenging diagnoses, and poorly understood causes. Dev Dyn. 2021 Mar;250(3):318-344. doi: 10.1002/dvdy.220. Epub 2020 Aug 17. PMID: 32629534; PMCID: PMC7785693.
17. Hakim AJ, Cherkas LF, Grahame R, et al. The genetic epidemiology of joint hypermobility: a population study offemale twins. Arthritis Rheum. 2004;50:2640‚2644.
18. Halverson CME, Penwell HL, Francomano CA. Clinician-associated traumatization from difficult medical encounters: Results from a qualitative interview study on the Ehlers- Danlos Syndromes. SSM Qual Res Health. 2023 Jun;3:100237. doi: 10.1016/j.ssmqr.2023.100237. Epub 2023 Feb 9. PMID: 37426705; PMCID: PMC10328215.
19. Halverson CME, Clayton EW, Garcia Sierra A, Francomano C. Patients with Ehlers- Danlos syndrome on the diagnostic odyssey: Rethinking complexity and difficulty as a hero's journey. Am J Med Genet C Semin Med Genet. 2021 Dec;187(4):416-424. doi: 10.1002/ajmg.c.31935. Epub 2021 Sep 15. PMID: 34524722.
20. Hamonet C., et al. “Ehlers-Danlos Syndrome (EDS) - Contribution to Clinical Diagnosis - A Prospective Study of 853 Patients”. EC Neurology 10.6 (2018).
21. Malfait F, Hakim AJ, De Paepe A, et al. The genetic basis of the joint hypermobility syndromes. Rheumatology (Oxford). 2006;45:502–507.
22. Malfait F, Castori M, Francomano CA, Giunta C, Kosho T, Byers PH. The Ehlers-Danlos syndromes. Nat Rev Dis Primers. 2020 Jul 30;6(1):64. doi: 10.1038/s41572-020-0194- 9. PMID: 32732924.
23. Silvia Morlino, Marco Castori, Placing joint hypermobility in context: traits, disorders and syndromes, British Medical Bulletin, Volume 147, Issue 1, September 2023, Pages 90–107, https://doi.org/10.1093/bmb/ldad013
24. Neshatian M, Mittal N, Huang S, Ali A, Khattignavong E, Bozec L. Investigation of dermal collagen nanostructures in Ehlers-Danlos Syndrome (EDS) patients. PLoS One. 2024 Aug 22;19(8):e0307442. doi: 10.1371/journal.pone.0307442. PMID: 39172992; PMCID: PMC11341037.
25. Nicholson LL, Simmonds J, Pacey V, De Wandele I, Rombaut L, Williams CM, Chan C. International Perspectives on Joint Hypermobility: A Synthesis of Current Science to Guide Clinical and Research Directions. J Clin Rheumatol. 2022 Sep 1;28(6):314-320. doi: 10.1097/RHU.0000000000001864. Epub 2022 Jun 3. PMID: 35661088; PMCID: PMC9422750.
26. Petrucci T, Barclay SJ, Gensemer C, Morningstar J, Daylor V, Byerly K, Bistran E, Griggs M, Elliot JM, Kelechi T, Phillips S, Nichols M, Shapiro S, Patel S, Bouatia-Naji N, Norris RA. Phenotypic Clusters and Multimorbidity in Hypermobile Ehlers-Danlos Syndrome. Mayo Clin Proc Innov Qual Outcomes. 2024 May 15;8(3):253-262. doi: 10.1016/j.mayocpiqo.2024.04.001. PMID: 38779137; PMCID: PMC11109295.
27. Quadt L, Csecs J, Bond R, et al. Childhood neurodivergent traits, inflammation and chronic disabling fatigue in adolescence: a longitudinal case–control study. BMJ Open 2024;14:e084203. doi:10.1136/ bmjopen-2024-084203
28. Ribatti D. The crucial role of mast cells in blood–brain barrier alterations. Exp Cell Res 2015;338:119–25.
29. Ritelli M, Chiarelli N, Cinquina V, Bertini V, Piantoni S, Caproli A, Della Pinna SEL, Franceschini F, Zarattini G, Gandy W, Venturini M, Zoppi N, Colombi M. Bridging the Diagnostic Gap for Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders: Evidence of a Common Extracellular Matrix Fragmentation Pattern in Patient Plasma as a Potential Biomarker. Am J Med Genet A. 2024 Sep 3:e63857. doi:
10.1002/ajmg.a.63857. Epub ahead of print. PMID: 39225014.
30. Rombaut L, Malfait F, De Wandele I, et al. Muscle mass, muscle strength, functional performance, and physi- cal impairment in women with the hypermobility type of Ehlers-Danlos syndrome. Arthritis Care Res (Hoboken). 2012;64(10):1584-1592. doi:10.1002/ acr.21726
31. Remvig L, Jensen DV, Ward RC. Epidemiology of general joint hypermobility and basis for the proposed criteria for benign joint hypermobility syndrome: review of the literature. J Rheumatol 2007;34:804–9.
32. Mark C. Scheper, Janneke E. de Vries, Rien de Vos, Jeanine Verbunt, Frans Nollet, Raoul H. H. Engelbert; Generalized joint hypermobility in professional dancers: a sign of talent or vulnerability?, Rheumatology, Volume 52, Issue 4, 1 April 2013, Pages 651–658
33. Sharp HEC, Critchley HD, Eccles JA. Connecting brain and body: Transdiagnostic relevance of connective tissue variants to neuropsychiatric symptom expression. World J Psychiatry. 2021 Oct 19;11(10):805-820. doi: 10.5498/wjp.v11.i10.805. PMID: 34733643; PMCID: PMC8546774
34. Song B, Yeh P, Harrell J. Systemic manifestations of Ehlers-Danlos syndrome. Proc (Bayl Univ Med Cent). 2020 Aug 26;34(1):49-53. doi:
10.1080/08998280.2020.1805714. PMID: 33456144; PMCID: PMC7785142.